Tuesday, November 10, 2009

Hospital

Here are some pics that I took in the hospital. The quality is not-so-good because I took them from my phone. No, I did not bring a camera with me. I honestly didn't even think about it when I was packing for the hospital. I am so glad this experience is over. I hope to never be back again!! Praying for no flare up! (which they say can happen. UGH!)

Pre-MRI

Out of MRI but still asleep. FYI....watching your child go under anesthesia is NO FUN AT ALL.

Night One

Poor baby girl!!


Eden loved looking out the window at the horsies! "Neeee!, Neeee!!!"

The phone in our room was her favorite part of the whole experience!

YAY! Brother came!!

Sunday, November 8, 2009

sunday

Nothing much to update today. She is sleeping in my lap, receiving her IV meds as I type. She is such a good girl, doesnt pull on her IV lines or anything anymore. She's being a little angel! I expect for everything to go well tomorrow and for us to get out of here. Ana is coming to relieve me later so I can go home and shower. Thanks to all who have helped and sent things for Eden. We are blessed.

Saturday, November 7, 2009

Eden update

Well I am updating this morning from the playroom at Children's Hospital. This playroom is amazing! When we walked in, Eden squealed and wiggled to get down. She is feeling so good, you would never know something is wrong with her!

I know most of you have had updates, but I will try to give a rundown of the last 24 hours.

Yesterday was the MRI on her hip. They saw infection in the muscle that runs along her hip, which is a condition called Myositis and also an infection in the upper part of her leg bone, which is the Osteomyelitis that they suspected when we got here Thursday. Since there was no abscess, there was no reason for surgery. They said the infection was most likely caused by a Staph infection, or possibly MRSA. They said it really didn't matter thought because the treatment would be the same either way. They started her on IV antibiotics last night.

This morning they came in for a blood draw and then we were visited by one of the Pediatric Orthopedists later. She said her inflammation markers had gone up, which was not a good thing, and then tenderness in her leg seems to be a little worse. These aren't good! She said there was a possibility they would do surgery today, but later came back and said they are going to stay with the conservative route and keep her on the meds until Monday. They will take another blood draw Monday and then if things are the same or even a little worse, they will have to take her in for surgery.

So please, if you are the praying type, pray for no darn surgery! If you aren't, cross everything you have. I don't want her to have to endure surgery! (although I know it would be fine if she did)

So until Monday we are at a stand still and there probably won't be anymore news. I will keep you posted if I hear anything. Thanks for all the thoughts, prayers and well wishes! XOXO

Thursday, November 5, 2009

Eden

I am the definition of tired right now. I am just gonna blog real quick to give everyone an update and then I am headed to bed.

Last week Eden came down with a virus. She was stuffy, coughing and I could tell she was stiff so I thought she had the flu. I took her in a few times and they told me it was not the flu, just a simple virus and to keep her on Motrin to keep her comfy and that was it. By Saturday she could barely walk. I took her to the ER Sunday morning for pain in her hip and total inability to walk (we had localized it to her left hip). They did an X ray, told me everything was fine, and gave her a diagnosis of Toxic Synovitis. Sounds bad, but it wasn't. They said just give her Motrin and it should get better.

Today happened to be her 15 month check up so I took her to the Pediatrician again. He told me that they read the Xray wrong and that they *did* see something, a "spot" on the Xray and that he was "worried about it". He said she needed to see a pediatric orthopedist and needed a Cat Scan or MRI immediately. He sent me over to Children's Hospital right away. When we got there they hooked up an IV, took blood for blood work and sent her in for an additional Xray. The doctor on duty told me that she thought it was a condition called Osteomyelitis, which is an infection of the bone on the hip. She said with her elevated blood counts and the pain not getting better, this was probably what it was. It is treatable, with surgery and IV antibiotics, but that she would need an MRI to be sure. She said it is "very rare in otherwise healthy children", but of course can happen, as she thought this was what was going on.

After she came in, one of the two pediatric orthopedists that we saw today came in the room. He said the X ray was clear so he thought it was something else going on. Then the OTHER orthopedist came in and said he thought it probably wasn't an infection in her hip bone, but in the surrounding joints and/or tissue. Very confusing information! Not only did we not really know the terms they were using, but we didn't really know what that meant for Eden and we were confused at the conflicting information.

Her MRI is scheduled for tomorrow at noon and we will know more after that happens. They said they would admit us regardless because A) if it WAS indeed an infection, they would need to take her to the OR later in the day for surgery on the hip and then keep her until the infection goes away, or B) if they DIDN'T find an infection then they would still have to admit her to start the "investigative process of what the heck was going on". Kinda like House! In fact, I asked if I needed to bring Dr. House in! (which I'm sure they hear all the time and he didn't find the joke as funny as I did).

Sooo, basically it is a waiting game. Keep this little angel in your prayers, I am so worried about her! My little baby girl is too tiny to have something wrong with her! :( I will try to keep the blog updated. I will have my phone in the hospital all day tomorrow and will be texting as often as I can with updates. Thanks for your thoughts and prayers everyone...you have all been so wonderful already!!



(****edited to add.....

I cannot leave this out today. This is 'other news' BUT. Jacob received an amazing award at school today. He receieved the Principals award, which is given to one student per grade. He got it for excellence in studies, behavior, willingness to help others and just generally being an awesome student. ONE Kindergartener got it...and it was him! I could not possibly be prouder if I tried. GO JACOB!!!

Tuesday, November 3, 2009

Halloween!

It was the year of Vampires. We had a Vampire adult party to go to and the boys decided they wanted to dress up like us. We had fun doing it, but I don't want to see another Vampire again! I'm Vamped out....

Mama Lou and Ebby were here for the Halloween festivities and we had a ball. The kids loved seeing them and they were a HUGE help to us. Thanks guys, we love you!!


Thursday, October 29, 2009

Vamparker


Vamparker, originally uploaded by jhdevenny.

It was Halloween at school today. MUA HA HA HA.....

Friday, October 23, 2009

Silly Girl!!

Every time I pull out the camera these days, she either A) Runs away, or B) Makes silly faces. How does she know at this age to make silly faces? I guess thats what happens when you have older brothers.

 

 

 

 
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